A website has been setup dedicated to saving Chloe's life and the lives of other little kids suffering from Vanishing White Matter disease, by raising awareness and much needed funds to Find A Cure.
Help us help Chloe, more can be found out here: http://www.chloesaxby.com.au/
Kabuki Syndrome is a rare, multisystem disorder characterized by multiple abnormalities including distinctive facial features, growth delays, varying degrees of intellectual disability, skeletal abnormalities, and short stature. Supporting Aussie Kids with Kabuki Syndrome www.sakks.org is a not for profit Australian chairty that our own Melasande Carey is the NSW state representative for.
Our key objectives are to support families and carers who have a child with Kabuki Syndrome - shared,
and raise awareness to the public and provide information to the medical sector to aide in earlier diagnosis and early intervention therapies.
If you'd like to donate please contact www.sakks.org .all donations aover $2 are tax deductible.
The benefit night Steves Joinery Hosted for Sakks at our UOW Innovation campus
Jamie's WishFor a young builder struggles with a brain tumour amidst a renovation of their family home.Jamie's Wish Video. Jamie's Fundraiser Page.
Support to make Jamie's wish come true has generously been also provided by:
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